I truly hate to see anyone else have to be in the same situation watching a horrible monster like Alzheimers/dementia slowly (sometimes not so slowly) fade someone away.
Pop is a navy man like me, and I can summon up a pile of cuss words with the best of them, but he would go on 8 hour (yes 8 HOURS), binges of yelling the most impressive stuff at the top of his lungs. He'd kick the walls, scream that people were "here for him" and he really had no sleep schedule, at all. He was cathetarized, so of course he would attack that (I bought jumpsuit like clothing to prevent that) I tried blue light therapy, different meds in different combos, nothing worked, nothing. So I flipped my own schedule. I went to work at 6am, got home at 3, went directly to sleep, woke up at 11, and stayed near him until I went to work (and the care folks came in). Often, because of the screaming or other episodes, I'd get an hour of sleep a day....After 6 months of that, the doctors wanted to admit me and get me on blood pressure meds....155/115 was the reading the first time, second was higher and raised eyebrows....I couldn't leave him alone, he gave up everything in life and sometimes worked 2,3 jobs...So I started stealing back 5 minutes here, 5 there....
For all of you folks who are caring for someone with it now or who did care for someone with it, out of all the lessons I learned from my dad over that year, the biggest one of all is that you have to take small moments for yourself. Even if it's 5 minutes, 5 minutes standing outside, listening to the trees.
It can be draining, it can make you more tired than anything you can ever imagine, it will test everything about you in ways you never thought possible. But no matter where you are in your journey with it and the loved one you are working with, know this; You have the greatest weapon this universe has ever known...Your love for that person. You can, will, survive that journey. You will feel broken, tired, and empty, but you are not and you are not alone. Doctors, other people, they will look at you and that person suffering with dull/unknowing eyes, they won't know how to deal with it, but you do and will become a master of improvisation. You will live in the reality of that person with alzheimers/dementia, the reality that can change minute by minute, because they can no longer live in ours and you will understand that everyone you meet, everywhere, could be dealing with something you can't see and because of that, this journey will change you.
For you folks like Hanso and Nat's wife, there isn't enough gold and thank you's in this world I could ever give to folks like you. Without the angels who came in to help both while I was at work, and while I slept as I could, I would have had a heart attack myself. From where I lived through with taking care of him, I can sincerely say that you guys are life-savers.
Nat, my mom whipped its' ass for 8 years, pushed it into remission from her first diagnosis without chemo/drugs/etc. She was full on warrior mode and it was a sight to behold. You my friend are a rocket rider, a tamer of the modern day T-Rex and I daresay you have a lot of fight in you.
Ride on brothers!